A Belmont reboot: Building a normative foundation for human research in the 21st century KB Brothers, SM Rivera, RJ Cadigan, RR Sharp, AJ Goldenberg The Journal of Law, Medicine & Ethics 47 (1), 165-172, 2019 | 232 | 2019 |
The ethical hazards and programmatic challenges of genomic newborn screening AJ Goldenberg, RR Sharp Jama 307 (5), 461-462, 2012 | 131 | 2012 |
Ethical issues with newborn screening in the genomics era BA Tarini, AJ Goldenberg Annual review of genomics and human genetics 13, 381-393, 2012 | 128 | 2012 |
Decision-making process for conditions nominated to the recommended uniform screening panel: statement of the US Department of Health and Human Services Secretary’s Advisory … AR Kemper, NS Green, N Calonge, WKK Lam, AM Comeau, ... Genetics in Medicine 16 (2), 183-187, 2014 | 126 | 2014 |
Genomic newborn screening: public health policy considerations and recommendations JM Friedman, MC Cornel, AJ Goldenberg, KJ Lister, K Sénécal, DF Vears BMC medical genomics 10, 1-13, 2017 | 109 | 2017 |
Parents’ interest in whole-genome sequencing of newborns AJ Goldenberg, DS Dodson, MM Davis, BA Tarini Genetics in Medicine 16 (1), 78-84, 2014 | 109 | 2014 |
State laws regarding the retention and use of residual newborn screening blood samples MH Lewis, A Goldenberg, R Anderson, E Rothwell, J Botkin Pediatrics 127 (4), 703-712, 2011 | 99 | 2011 |
Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies J Johnston, JD Lantos, A Goldenberg, F Chen, E Parens, BA Koenig, ... Hastings Center Report 48, S2-S6, 2018 | 85 | 2018 |
Not without my permission: parents’ willingness to permit use of newborn screening samples for research BA Tarini, A Goldenberg, D Singer, SJ Clark, A Butchart, MM Davis Public Health Genomics 13 (3), 125-130, 2010 | 76 | 2010 |
Pediatric biobanks: approaching informed consent for continuing research after children grow up AJ Goldenberg, SC Hull, JR Botkin, BS Wilfond The Journal of pediatrics 155 (4), 578-583. e13, 2009 | 76 | 2009 |
Public attitudes regarding the use of residual newborn screening specimens for research JR Botkin, E Rothwell, R Anderson, L Stark, A Goldenberg, M Lewis, ... Pediatrics 129 (2), 231-238, 2012 | 73 | 2012 |
Genomic contextualism: shifting the rhetoric of genetic exceptionalism NA Garrison, KB Brothers, AJ Goldenberg, JA Lynch The American Journal of Bioethics 19 (1), 51-63, 2019 | 68 | 2019 |
Retention and research use of residual newborn screening bloodspots JR Botkin, AJ Goldenberg, E Rothwell, RA Anderson, MH Lewis Pediatrics 131 (1), 120-127, 2013 | 60 | 2013 |
Assessing public attitudes on the retention and use of residual newborn screening blood samples: a focus group study E Rothwell, R Anderson, A Goldenberg, MH Lewis, L Stark, M Burbank, ... Social science & medicine 74 (8), 1305-1309, 2012 | 45 | 2012 |
Evaluating harms in the assessment of net benefit: a framework for newborn screening condition review AJ Goldenberg, AM Comeau, SD Grosse, S Tanksley, LA Prosser, ... Maternal and child health journal 20, 693-700, 2016 | 44 | 2016 |
Addressing underrepresentation in genomics research through community engagement AA Lemke, ED Esplin, AJ Goldenberg, C Gonzaga-Jauregui, ... The American Journal of Human Genetics 109 (9), 1563-1571, 2022 | 40 | 2022 |
members of the NSIGHT Ethics and Policy Advisory Board. Sequencing newborns: A call for nuanced use of genomic technologies J Johnston, JD Lantos, A Goldenberg, F Chen, E Parens, BA Koenig Hastings Cent. Rep 48 (Suppl 2), S2-S6, 2018 | 37 | 2018 |
Standardization of post‐thrombotic syndrome definition and outcome assessment following upper venous system thrombosis in pediatric practice S Revel‐Vilk, LR Brandão, J Journeycake, A Goldenberg, P Monagle, ... Journal of thrombosis and haemostasis 10 (10), 2182-2185, 2012 | 36 | 2012 |
Concerns of newborn blood screening advisory committee members regarding storage and use of residual newborn screening blood spots EW Rothwell, RA Anderson, MJ Burbank, AJ Goldenberg, MH Lewis, ... American journal of public health 101 (11), 2111-2116, 2011 | 36 | 2011 |
Prenatal education of parents about newborn screening and residual dried blood spots: a randomized clinical trial JR Botkin, E Rothwell, RA Anderson, NC Rose, SM Dolan, ... JAMA pediatrics 170 (6), 543-549, 2016 | 35 | 2016 |